Sibling Resources
The Massachusetts Sibling Support Network supports siblings of people with disabilities across the Commonwealth. We strive to create welcoming communities for siblings that are inclusive, empowering, and provide needed answers. We are a leader in promoting the sibling voice at tables across Massachusetts as we provide direct sibling support services, including educational presentations and information and referral support.
The National Autism Association‘s ASD & Siblings toolkit is a guide created to help parents understand and address feelings and challenges often experienced by children who have a brother or sister with autism.
The Autism Society of America has created a webpage for siblings, which offers resources focused on how to cope with the experience of having a brother or sister with autism.
The Organization for Autism Research produced several resources focused on autism siblings, including a parent’s guide to supporting siblings, a teen sibling guide, and a young sibling booklet. To access their guides, click here.
The Rare Epilepsy Network has compiled a list of resources for siblings of those with rare genetic disorders and special health care needs and can be viewed by clicking here.
Sibshop is a curriculum based support network used throughout the United States and Canada and in Hong Kong, Japan, Mexico, New Zealand, Argentina, Ecuador, Iceland, Ireland, England, Italy, Malta, Singapore, and Turkey. It is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns. To find a Sibshop or create your own, click here.
The Sibling Leadership Network offers information about state chapters, sibling conferences, as well as policy & advocacy tools to help adult siblings become informed advocates.
Profound Autism Alliance is building a network of partners focused on inclusive research and legislative changes to improve the lives of individuals with profound autism. Our mission is to improve their health and connection through inclusive research and focused advocacy that will result in meaningful services and supports.
Palm Beach Spectrum Group The purpose of our service is to provide adults and children with disabilities a high quality fitness program which aims to not only increase bodily health, but mental well being through increasing communication and creating a strong client to client network. These programs are catered to individual goals that are established prior to the first session. This is done through one on one and group fitness programs that promote connecting clients in a realm where they grow on a deeper level through a shared medium (physical fitness). Download Flyer
Email: pbspectrumgroup@gmail.com Instagram: pbspectrumgroup
For Your Autistic Sibling
Explore Work has trainings available for teens with disabilities to prepare for life after high school and becoming an adult. Explore work can help youe sibling find jobs that could be a good fit, try out jobs, uncover education and training options to help meet job goals, learn about self-advocacy, and get skills to help succeed at work and school.
“Skills to Pay the Bills: Mastering Soft Skills for Workplace Success,” is a curriculum developed by ODEP focused on teaching “soft” or workforce readiness skills to youth, including youth with disabilities. Created for youth development professionals as an introduction to workplace interpersonal and professional skills, the curriculum is targeted for youth ages 14 to 21 in both in-school and out-of-school environments. The basic structure of the program is comprised of modular, hands-on, engaging activities that focus on six key skill areas: communication, enthusiasm and attitude, teamwork, networking, problem solving and critical thinking, and professionalism. The links below breaks the facilitator guide into easy to use sections.
https://www.dol.gov/agencies/odep/program-areas/individuals/youth/transition/soft-skills
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations. Their resources include an A-Z guide of disabilities and accommodations for the workplace as well as a JAN Blog and quarterly newsletters.
At Aacessible we believe that empowerment comes when quality AAC support is second nature to professionals and readily accessible to communicators and families. We aim to see the vision of more accessible AAC come to life through the avenues of professional and community education and resources. List of AT and AAC Lending Library programs across the United States.
Project10 includes resources about self-advocacy and self determination and how to foster these in your sibling through a series of courses and curricula. Geared primarily towards individuals with a disability, understanding these resources can help siblings of those with disabilities to navigate through the transition to adulthood.
“Over time I have become more patient with my brother, and have learned how to communicate with him through his non-verbal cues like his body language and expressions”
-Sam’s Sibs Stick Together Participant